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Objective/backgroundThe utility of the pictorial Epworth sleepiness scale (pESS) has been assessed by only a few studies in a clinical population. Some of its questions may be inappropriate in certain patient groups. The aim of this study was to assess the utility of the pESS in the adult Down syndrome (DS) population in the United Kingdom (UK).Patients/methodsA modified sleep questionnaire including the pESS was administered to 5430 adults with DS living in the UK. Standard statistical analysis was undertaken.ResultsOf 1105 valid responses (20.35%), the pESS was incomplete in 129 (11.67%) cases. Of the incomplete responses, "Q1. Likelihood of dozing/falling sleep while sitting and reading?" was most frequently missed (63.6% of 129 responses).ConclusionsThe pESS may not be entirely appropriate in certain populations such as those with intellectual disability where literacy levels may be low. Question modification may be necessary.Clinical trial registration numberISRCTN55685305.

Original publication

DOI

10.1016/j.sleep.2019.10.003

Type

Journal article

Journal

Sleep medicine

Publication Date

02/2020

Volume

66

Pages

165 - 167

Addresses

The Dept of Sleep Medicine, Royal Infirmary of Edinburgh, 51 Little France Crescent, Little France, EH16 4SA, Edinburgh, Scotland, UK. Electronic address: lizzie.hill@ed.ac.uk.

Keywords

Humans, Down Syndrome, Disorders of Excessive Somnolence, Adult, Middle Aged, Female, Male, Surveys and Questionnaires, United Kingdom