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BACKGROUND: Stroke patients of lower socioeconomic status have worse outcomes. It remains poorly understood whether this is due to illness severity or personal or health system barriers. We explored the experiences of stroke patients with financial barriers in a qualitative descriptive pilot study, seeking to capture perceived challenges that interfere with their poststroke health and recovery. METHODS: We interviewed six adults with a history of stroke and financial barriers in Alberta, Canada, inquiring about their: (1) experiences after stroke; (2) experience of financial barriers; (3) perceived reasons for financial barriers; (4) health consequences of financial barriers; and (5) mechanisms for coping with financial barriers. Two reviewers analyzed data using inductive thematic analysis. RESULTS: The participants developed new or worsened financial circumstances as a consequence of stroke-related disability. Poststroke impairments and financial barriers took a toll on their mental health. They struggled to access several aspects of long-term poststroke care, including allied health professional services, medications, and proper nutrition. They described opportunity costs and tradeoffs when accessing health services. In several cases, they were unaware of health resources available to them and were hesitant to disclose their struggles to their physicians and even their families. CONCLUSION: Some patients with financial barriers perceive challenges to accessing various aspects of poststroke care. They may have inadequate knowledge of resources available to them and may not disclose their concerns to their health care team. This suggests that providers themselves might consider asking stroke patients about financial barriers to optimize their long-term poststroke care.

Original publication

DOI

10.1017/cjn.2016.411

Type

Journal article

Journal

Can J Neurol Sci

Publication Date

03/2017

Volume

44

Pages

146 - 151

Keywords

Cerebrovascular disease, Communication, Doctor-patient relationship, Education, Financial barriers, Health services research, Outcomes research, Qualitative research, Quality of care, Stroke, Adult, Aged, Alberta, Cost of Illness, Disabled Persons, Female, Health Services Accessibility, Humans, Male, Middle Aged, Pilot Projects, Qualitative Research, Stroke