Epilepsy Research Institute UK Sudden Unexpected Death in Epilepsy (SUDEP) workshop: Identifying the pre-clinical and clinical priorities for SUDEP research.

Pickard H., Ashby S., Sibree D., Elliott M., Bhandare A., Wykes RC., Sen A., Epilepsy Research Institute SUDEP Working Group .

The Epilepsy Research Institute's Mortality, Morbidity and Risk Theme workshop on Sudden Unexpected Death in Epilepsy (SUDEP) brought together a diverse group of stakeholders, including basic science researchers, clinicians and clinical researchers, charity partners, bereaved individuals and people with epilepsy to identify important gaps in pre-clinical and clinical SUDEP research. Collectively, the SUDEP workshop highlighted recommendations for future research to address several identified gaps and the need to develop infrastructures that utilise data-driven approaches to reduce SUDEP risk. National and global cross-institution collaborations will be fundamental in driving these research efforts forward.

DOI

10.1016/j.yebeh.2025.110473

Type

Journal article

Publication Date

2025-10-01T00:00:00+00:00

Volume

171

Keywords

Epilepsy, Mortality, Research gaps, Risk, Seizure, Humans, Sudden Unexpected Death in Epilepsy, United Kingdom, Epilepsy, Biomedical Research, Death, Sudden

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