Families for the Treatment of Hereditary MND (FaTHoM)
Families for the Treatment of Hereditary MND (FaTHoM) is an initiative to bring together the community of families affected by inherited (genetic) forms of MND.
With meetings and events consisting of expert talks on key issues affecting such families, FaTHoM is open to any person living with an inherited form of MND, and the close relatives of those affected by inherited forms of the disease.
A dedicated day for those affected by genetic forms of MND and their wider families. An opportunity to learn about current and future trials and research from leading neurologists and researchers, and to meet with other families from around the country living with hereditary MND in a friendly and supportive educational environment.
For further information on FaTHoM Day, please email: MNDResearch@ndcn.ox.ac.uk
You can watch the presentations from the third FaTHoM Day, held in Oxford on 27th September 2023, below.
HOW TO TARGET MND GENES
Professor Kevin Talbot, Nuffield Department of Clinical Neurosciences, University of Oxford
SOD1, NEUROFILAMENTS & 'EXPERTS'
Professor Martin Turner, Nuffield Department of Clinical Neurosciences, University of Oxford
UK-BIOBANK INSIGHTS & INTRODUCING 'ACORN'
Dr Alex Thompson, Nuffield Department of Clinical Neurosciences, University of Oxford
DEVELOPING RESOURCES TO SUPPORT PEOPLE WITH MND AND FAMILIES
Dr Jade Howard, Sheffield Institute for Translational Neuroscience, University of Sheffield
THE 'GENFI' EXPERIENCE & INSIGHTS
Professor Jon Rohrer, University College London (UCL), Institute of Neurology
PRE-SYMPTOMATIC FAMILIAL ALS: The long view to disease prevention
Professor Michael Benatar (streamed presentation), University of Miami
Watch all the presentations from the first FaTHoM Day, held in Oxford on 18 April 2017.
Watch all the presentations from the second FaTHoM Day, held in Oxford on 17 April 2019.