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FaTHoM logoFamilies for the Treatment of Hereditary MND (FaTHoM) is an initiative to bring together the community of families affected by inherited (genetic) forms of MND.

With meetings and events consisting of expert talks on key issues affecting such families, FaTHoM is open to any person living with an inherited form of MND, and the close relatives of those affected by inherited forms of the disease.

FaTHoM Day 2023


A dedicated day for those affected by genetic forms of MND and their wider families. An opportunity to learn about current and future trials and research from leading neurologists and researchers, and to meet with other families from around the country living with hereditary MND in a friendly and supportive educational environment.

Who should attend?

Anyone living with a form of MND that has been linked by DNA testing to a specific genetic change is encouraged to attend this day. It is also an event for close relatives of such individuals.

We have set a maximum of 4 people in total per family, and all must be aged over 18.

Attendance is free and lunch is included

When/Where is it taking place?

FaTHoM Day 2023 will take place from 9.30am to 5.00pm on Wednesday 27 September 2023 at: 

Saïd Business School, University of Oxford 

Park End Street, Oxford, OX1 1HP

The venue is immediately adjacent to Oxford train station.

View location on Google Maps


Register for the event 


For further information on FaTHoM Day, please email:

Previous meetings

Watch all the presentations from the first FaTHoM Day, held in Oxford on 18 April 2017.

Watch all the presentations from the second FaTHoM Day, held in Oxford on 17 April 2019.


 NIHR BRC logo