Families for the Treatment of Hereditary MND (FaTHoM)
Families for the Treatment of Hereditary MND (FaTHoM) is an initiative to bring together the community of families affected by inherited (genetic) forms of MND.
With meetings and events consisting of expert talks on key issues affecting such families, FaTHoM is open to any person living with an inherited form of MND, and the close relatives of those affected by inherited forms of the disease.
FaTHoM Day, 2026
A dedicated day for those affected by genetic forms of MND and their wider families. An opportunity to learn about current and future trials and research from leading neurologists and researchers, and to meet with other families from around the country living with hereditary MND in a friendly and supportive educational environment.
FaTHoM Day, 2026 was held on Thursday, April 30th 2026 at the Milton Hill House Hotel, Abingdon, Oxfordshire. The event was made possible through the generous support of the MND Association and the NIHR Biomedical Research Centre: Oxford.
To download a copy of the programme for the day and list of presenters and their bios, please CLICK HERE
PRESENTATIONS
FaTHoM Day 2026 Presentation - Martin Turner - WELCOME & OVERVIEW
FaTHoM Day 2026 Presentation - Kevin Talbot - GENE TARGETING UPDATE
FaTHoM Day 2026 Presentation - Alexander Thompson - ACORN+
FaTHoM Day 2026 Presentation - Andrew Douglas-TOWARDS PERSONALISED GENETIC RISK CALCULATION
FaTHoM Day 2026 Presentation - Alisdair McNeill - DECISION-MAKING TOOLS FOR GENETIC TESTING
FaTHoM Day 2026 Presentation - Ammar Al-Chalabi - CAN A ROBOT BE A GENETIC COUNSELLOR?
FaTHoM Day 2026 Presentation - Lauren Elman - TOFERSEN: THE LONGER-TERM DATA
FaTHoM Day 2026 Presentation - Jiali Gao - INSIGHTS FROM UK-BIOBANK
FaTHoM Day 2026 Presentation - Rhian Convery - GENFI UPDATE
INTERVIEWS
FaTHoM interview - Martin Turner
FaTHoM interview - Kevin Talbot
FaTHoM interview - Brian Dickie
FaTHoM interview - Alex Thompson
FaTHoM interview - Andrew Douglas
FaTHoM interview - Ammar Al-Chalabi
FaTHoM interview - Emma Bouche
HIGHLIGHTS OF THE DAY
For further information on FaTHoM Day, please email: MNDResearch@ndcn.ox.ac.uk
You can watch the presentations from the third FaTHoM Day, held at the Saïd Business School in Oxford on 27th September 2023, below.
FaTHoM Day 2023 Presentation - Kevin Talbot - HOW TO TARGET MND GENES
FaTHoM Day 2023 Presentation - Martin Turner - SOD1, NEUROFILAMENTS & 'EXPERTS'
FaTHoM Day 2023 Presentation - Alex Thompson - UK BIOBANK INSIGHTS & INTRODUCING 'ACORN'
FaTHoM Day 2023 Presentation - Jon Rohrer - THE 'GENFI' EXPERIENCE AND INSIGHTS
