Families for the Treatment of Hereditary MND (FaTHoM)
Families for the Treatment of Hereditary MND (FaTHoM) is an initiative to bring together the community of families affected by inherited (genetic) forms of MND.
With meetings and events consisting of expert talks on key issues affecting such families, FaTHoM is open to any person living with an inherited form of MND, and the close relatives of those affected by inherited forms of the disease.
FaTHoM Day
A dedicated day for those affected by genetic forms of MND and their wider families. An opportunity to learn about current and future trials and research from leading neurologists and researchers, and to meet with other families from around the country living with hereditary MND in a friendly and supportive educational environment.
For further information on FaTHoM Day, please email: MNDResearch@ndcn.ox.ac.uk
You can watch the presentations from the third FaTHoM Day, held in Oxford on 27th September 2023, below.
HOW TO TARGET MND GENESProfessor Kevin Talbot, Nuffield Department of Clinical Neurosciences, University of Oxford |
SOD1, NEUROFILAMENTS & 'EXPERTS'Professor Martin Turner, Nuffield Department of Clinical Neurosciences, University of Oxford |
UK-BIOBANK INSIGHTS & INTRODUCING 'ACORN'Dr Alex Thompson, Nuffield Department of Clinical Neurosciences, University of Oxford |
DEVELOPING RESOURCES TO SUPPORT PEOPLE WITH MND AND FAMILIESDr Jade Howard, Sheffield Institute for Translational Neuroscience, University of Sheffield |
THE 'GENFI' EXPERIENCE & INSIGHTSProfessor Jon Rohrer, University College London (UCL), Institute of Neurology |
PRE-SYMPTOMATIC FAMILIAL ALS: The long view to disease preventionProfessor Michael Benatar (streamed presentation), University of Miami |
Previous meetings
Watch all the presentations from the first FaTHoM Day, held in Oxford on 18 April 2017.
Watch all the presentations from the second FaTHoM Day, held in Oxford on 17 April 2019.
