The ACORN study will identify and characterise patients and asymptomatic family members who carry the C9orf72 gene mutation, and create a national register of this cohort, facilitating further research and study participation.
ACORN is a national research study aimed at understanding more about the genetic basis of Motor Neuron Disease (MND) and Frontotemporal Dementia (FTD).
This exciting area of research could contribute to the development of new therapeutic strategies and neurochemical biomarkers for these neurodegenerative diseases.
As a part of the study, we will create a national register of MND and FTD patients and their family members, for future research.
The study is funded by the Oxford NIHR Biomedical Research Centre (Preventive Neurology - Neurodegeneration theme), and through a generous multi-year gift from the Alan Davidson Foundation to the Oxford MND Care and Research Centre.
For more information, or to register your interest in participating (as a patient, family member or healthy volunteer) in this study, please contact the ACORN study team by email at: firstname.lastname@example.org or by phone at: 01865 228-371
For information on getting involved in general research, please visit the Oxford NIHR Biomedical Research Centre.