Cookies on this website

We use cookies to ensure that we give you the best experience on our website. If you click 'Accept all cookies' we'll assume that you are happy to receive all cookies and you won't see this message again. If you click 'Reject all non-essential cookies' only necessary cookies providing core functionality such as security, network management, and accessibility will be enabled. Click 'Find out more' for information on how to change your cookie settings.

The ACORN study will identify and characterise patients and asymptomatic family members who carry the C9orf72 gene mutation, and create a national register of this cohort, facilitating further research and study participation.

Study aims

ACORN is a national research study aimed at understanding more about the genetic basis of Motor Neuron Disease (MND) and Frontotemporal Dementia (FTD).

This exciting area of research could contribute to the development of new therapeutic strategies and neurochemical biomarkers for these neurodegenerative diseases.

As a part of the study, we will create a national register of MND and FTD patients and their family members, for future research.


The study is funded by the Oxford NIHR Biomedical Research Centre (Preventive Neurology - Neurodegeneration theme), and through a generous multi-year gift from the Alan Davidson Foundation to the Oxford MND Care and Research Centre.

Alan Davidson Foundation logo      NIHR BRC logo

Get involved

For more information, or to register your interest in participating (as a patient, family member or healthy volunteer) in this study, please contact the ACORN study team by email at: or by phone at: 01865 228-371 

For information on getting involved in general research, please visit the Oxford NIHR Biomedical Research Centre.